NIHR Children and Young People with Learning Disabilities research opportunities

Great Ormond Street Hospital for Children (GOSH) are looking to recruit a full-time Research Fellow and Associate to work on an National Institute for Health Research (NIHR) funded project focussed on the organisation and delivery of hospital care and services to children and young people with and without learning disability.

This posts are available for a 36-month period for 5 days a week from 01.12.15. You will be based within the Centre for Outcomes and Experience Research in Children’s Health Illness and Disability (ORCHID), a dedicated multidisciplinary research unit in GOSH. The focus of our research is on the impact of health, illness and disability for children and young people and their families, with a particular emphasis on the translational benefits and implementation in clinical practice.

The postholder will work on an NIHR Health Services and Delivery Grant. This is a national mixed methods study aimed at identifying the barriers and facilitators to ensuring equal access to high quality hospital care and services for children and young people with learning disability and their families.

You will also be involved with other stages of the research project, including undertaking a literature review, updating the project website, data analysis, facilitating stakeholder workshops and writing up the findings for dissemination.

For more details of the positions, check the links below:-

For further information on this exciting opportunity, please contact Dr Kate Oulton on kate.oulton@gosh.nhs.uk or 0207 829 7822

Reasonable Adjustments Conference Report & Presentations – 17th June 2015

This year’s Conference was based on how we can all implement reasonable adjustments for people with learning disabilities in our work. The conference participants and the Community of Practice team found each of the presentations insightful, interesting and thought provoking. The audience participation and inclusion generated great debate and key questions for reflective thought.  Main focus with regards to barriers to ensuring services and people are well adjusted to meet the needs of these individuals.  There were lots of opportunities for networking which allowed all to address some key questions and barriers to ensure services and people are well adjusted to meet the needs of these individuals.   Delegates shared personal insights and experiences, while remembering that people with learning disabilities are no less human than anyone else.

All the presentations and and resources from the day are available on the conference page. Please click here

Professor Chris Hatton from The University of Lancaster was guest speaker and he opened the event with the provocative question – “are you well adjusted? “

The event was a great success in showcasing some of the excellent work and initiatives happening across Kent for people with learning disabilities particularly around access to health care and therapies.

Feedback received from the attendees from the day was very positive.   We would like to thank you all for your responses; which are invaluable to making next years Conference even more of a success.

Individuals who could not make the conference were able get involved via twitter using the #LDWeek15 and #ldcop15 hashtags. A full transcript of this conversation including photos are available by clicking here.

The day was held during Learning Disability Awareness Week “inclusion” and all participants wanted to mark this by having their support shared via the below photo being shared on Twitter.

#ldweek15 picture

For further details on the whole day click on the conference page by clicking here.

Tracey Rose

Community Learning Disability Nurse

Twitter @traceypockett 

 

Kent and Medway Learning Disability Community of Practice Purpose

After an extended period of consultation reflection and some changes, we are pleased to share the final versions of the Purpose of this Community of Practice.

To download these please click on the picture below.

CoP Easy Read purposeCoP Purpose

 

 

 

 

 

 

 

The first four actions identified as priorities by the group that met in May 2013 are:-

1) Help people with learning disabilities to know what to expect
2) Raise awareness with front line staff
3) Think about how we will know the Community is working well
4) Influencing people, organisations and governments.

So far we are pleased to have 91 people or organisations following this blog, many of whom are supporting and caring for people on a daily basis. We are also pleased to have been sharing opportunities for people with learning disabilities and frontline staff to get involved with.

We have been approached by care staff and family carers to help them identify how to know what to expect, and what is expected of them when they are admitted to hospital. We are going to be looking for people to help with a project like this. Do you know anyone that might want to help?

Please let us know by leaving a comment below or sending me an email to daniel.marsden@nhs.net.